Ten days ago, I wrote about “death control,” encouraging legislation for and use of medical aid/assistance in dying, often referred to as MAID (or MAiD). But as I wrote then, MAiD cannot legally be used for those suffering from severe dementia such as caused by Alzheimer’s disease.
The
Prevalence of Alzheimer’s/Dementia Patients
Alzheimer’s
disease and other forms of acute dementia is a prevalent problem in this
country, and in many countries around the world.
In
the U.S., “The Alzheimer's Association leads the way to end Alzheimer's and all
other dementia—by accelerating global research, driving risk reduction and
early detection, and maximizing quality care and support.”
On
their website,
the Alzheimer’s Association reports that currently more than 6,000,000 Americans
are living with Alzheimer’s.
There can be no doubt but that Alzheimer’s/dementia is a prevalent health problem—and one that is made worse because at present there seems to be no sure way to prevent its onset or to cure it once it begins.
The
Sadness over Alzheimer’s/Dementia Patients
We
don’t/can’t know what sadness an Alzheimer’s/dementia patient himself/herself feels,
but clearly, the family/friends of such patients repeatedly feel great sadness,
as I have personally experienced.
My
mother passed away in February 2008 at the age of 94. She was never diagnosed
as having Alzheimer’s, but for several years her dementia grew worse and worse.
It was a sad time for her family, especially for my father who cared for her at
home until his hospitalization and death in July 2007.
Maybe
it was about a year before she died that I realized the seriousness of, and the
sadness of, my mother’s condition. I made the two-hour drive from my home to
visit her at her home in northwest Missouri. That morning, my sister, who lived
a five-minute walk down the road, came over to visit.
After the three of us had a convivial chat, my sister left to attend to other matters. Right after she left, my mother cheerfully said to me, “That was a nice lady. Who was she?”
At that point, the sadness spurred by talking with a dementia patient hit me as never before. Still, I tried to visit my mother as much as possible and my sister saw her almost daily.
Perhaps
you have heard the story of the man who went to the care facility where his
wife, suffering from severe dementia, was a resident. Her illness had
progressed to the stage that she no longer knew her husband, so someone asked
the man, “Why do you keep going to visit her?”
The
man’s answer, “She may not know who I am, but I know who she is!”
That
is what my sister and I felt about Mom.
MAiD
for Alzheimer’s Patients?
In
two recent blog posts, I have written about using MAiD, medical assistant/aid
in dying. But that is not now, and maybe never will be, an option for Alzheimer’s/dementia
patients.
Both
for the sake of the patients and for the sake of their families, it would seem
that some form of death control would be desirable. But at this time, it is not
legal and does not seem feasible—and it may never be.
As
I have previously explained, MAiD makes it possible for a terminally ill person
to choose to die.
That
decision, though, must be the patient’s own choice and can be no more than six months
before their death as prognosticated by competent doctors. For Alzheimer’s/ dementia
patients, however, it is either too soon to make that fateful choice or too
late for them to be able to do so.
So,
what can/should be done? At this time, perhaps all that can be done is to provide
for the comfort of the patient and then to practice “passive euthanasia.”
That
is, whenever someone with acute Alzheimer’s/dementia develops a serious illness,
see that their pain/suffering is mitigated as much as possible and then allow
nature to take its course, rejecting medical means to keep the patient alive.
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